what not to do when you have cluster headache
Tin y'all describe what the pain feels like?
Firstly, it is one-sided. > 95% of the time for me it is left hand side. Imagine a clench around your caput tightening, but at the same time there is a sharp hot object backside your left eye trying to drill an go out hole through your eye. The clamp continues to tighten – and every time that yous bargain with the universe that "OK, thats my limit, cease now pleas" it tightens a niggling more. You vomit, loss of balance, and sometimes get quite scared for no existent reason. You lot know what is going on (most of the fourth dimension) but yous take a deep feeling of fright. I also taste stone at the top of my caput (how weird).
I've been run over at an estimated forty MPH, I've broken legs, arms, dislocated knees and nothing comes close to this. It does take you to a new level of hurting – and the human body tin can accept more than than y'all tin can imagine.
Cluster headache are probably the worst pain that humans feel.
How does it compare to getting kicked in the balls?
About the manner getting flicked on the arm feels compared to getting a steak knife driven into it.
Do yous ever contemplate suicide?
To be brutally honest – yes, at the worst moments, it is an option. Anything to impale the pain. Now that I am on O2 therapy and we are stabilizing the daily attacks, that has helped. Sometimes, when you lot are in a 3 day attack with no relief, it does seem like the but road, but near of the time it actually makes you lot appreciate the good moments more than.
Did you say 3 day attacks? Like not-stop? How practice you swallow / sleep / work?
You lot learn to adapt – and then exercise your family unit. The primary clusters are timed: 01:fifteen and 05:00 are my worst ones – using oxygen and at least one dose of Imigran Injection. The challenge is that you can just employ two Imigram per day – so whilst it does abort the set on, it has limited use in any 24 hour period. The pure O2 therapy works very well, and my wife and kids discover the alarm signs now earlier me, so I can now bang on the O2 for one-half an hour equally it come on. Its not the about fun I can imagine, only you learn to cope. I piece of work my own business, so I can program from dwelling when my trunk allows me to work, and they guys at piece of work are amazing also.
Having a family and workmates that are understanding is the best affair in the world though. They know that when the beast kicks in, it takes priority over everything – Everything – I mean Christmas, New Years, Birthday, misses then all because of this damn affair, it just takes over when information technology wants to. But hey, its not last, I'm alive, and people have information technology worse.
How long do the attacks usually last for you?
It can be every bit short as ane.v hours if information technology wants to responds to the oxygen and Zomig – AND if I spot information technology in fourth dimension, rising to 3 hours if it feels like being stubborn or if I didn't treat it in-time (with headaches for the residual of the day but at least the major assault is over)
Worst instance, this tin be upwardly to three days if untreated or simply because its my plow to get a long i and my body decides fuck you, thats why.
Is oxygen the best way to alleviate the pain?
Yes, the oxygen is the best thing that Ive tried bated from the Imigran (but that has express uses in a day -O2 is unlimited and 100% natural). I will normally sit on the oxygen for half an hour and it may abourt, or at least concord information technology off long enough for something else to take effect (Zomig or zydol depending on severity.)
Are you lot able to do annihilation when you accept a headache?
No, fraid not. Its consummate zombie country. Lying in bed, crying, waiting for the hurting to pass, cant cook, difficult time walking, dont actually experience like eating or drinking. This tin lead to issues in the longer ones because you have to keep hydrated, merely IF you only dont beverage whatever fluids when you are in one – then this just extends your cluster period!
What's the most unconventional or weirdest thing yous tried to cease the pain?
Weirdest thing was trying to knock myself out – ran head offset at walls, blood let, hit my kneecap with a brick to distract the pain – none of it worked!
When did you lot start outset getting the attacks?
Virtually 15 years agone – started off as migraines then (one every three months), simply changed forms about 6 years ago and became increasingly regular. The Dr admitted that this was not migraine behaviour, did the usual CAT scans etc, and somewhen sent to a Neurologist. Good boy NHS, the Neurologist instantly know what was. The O2 therapy and Imigran cant be cheap, only welcome to the United kingdom of great britain and northern ireland -the NHS do non permit that cross their mind – one time they have you lot diagnosed, they do everything they can to assistance.
I don't remember the first specifically, but I was effectually xiv-15 when they first started, and my reaction was generally to throw up and go sit down in the closet in the night with a blanket over my head because that'due south the but matter that felt meliorate.
I as well shared a room with my younger brother at the time, who was quite loud and abrasive, and so I tended to be very fierce and throw things at him when I had a headache and he wouldn't turn down his TV or stop beingness annoying.
Exercise you know what causes them?
I take some basic triggers (dehydration, tiredness etc) merely not the usual migraine triggers like nutrient, coffee, paint, perfume etc.
What's the difference betwixt cluster headaches and migraines?
Cluster headaches are by and large several orders of magnitude more painful, focused, and come one later on another in "clusters" hence the name. They are not triggered past anything we know of, unlike migraines that tin be brought on past light, sounds, etc. They can as well disappear for months, even years at a fourth dimension, only to come up back nonstop for fifty-fifty weeks without rest.
Take you ever been confronted by someone maxim "some event" hurts more than. If so how did it go down?
Yep, I've had that. "But take a few ibuprofen and walk it off, or beverage some water" thanks random co-worker, if only I had thought of that sooner.
I know some people are really trying to help, but some people are and so bitchy and passremarkable. That presently stops the mean solar day you simply collapse in a heap, featal like on the deck, unable to move, ambulance called as you can't even speak properly (one co-worker afterward said I sounded possessed!). That tends to allow them know what scale of hurting we are really talking about. The comments soon finish later on that
What medicine do you take for it? Accept y'all tried medical mj?
I don't have whatever prescription medication for them currently. I used to accept 800mg Ibuprofen, just they stopped working. I had the opportunity to try Vicodin for them, and it did not do anything but make me pee a lot.
Marijuana doesn't do anything for them either. It does assistance to distract my thoughts sometimes, but I wouldn't really consider that a treatment.
Have yous ever tried morphine-based drugs to alleviate the pain?
A few of the medications are morphine based – and whilst they lift the smaller attacks, the problem with them is two fold: one.) Fourth dimension taken for the trunk to blot. They but have besides long to get into the system. Past the fourth dimension the pain killing element kicks in, the hurting level is beyond medicating. The injection or the O2 is a lot more directly and quicker. 2.) Rebound headaches. Aye, the man body is a scumbag. It can give yous rebound headaches so that it can get more codine or zydol!!
The injections are amazing – Simply worth pointing out that they are not traditional pain killers. if you were in any sort of pain, I could give you lot this and information technology would take no event at all. They piece of work past irresolute the expansion/wrinkle of the blood vessels in the brain and perhaps likewise assist with Serotonin binding – but to be honest, the medical trade know they piece of work but are not 100% certain why!
I hear pocket-sized doses of Psilocybin have been known to nigh cure cluster headaches. It is as well a legal form of treatment.
Ive heard they work, just not tried them however. I rule out nothing. I would inject heroin direct into my eyeball during an assail if you said that it would assist!
Are there any long term side furnishings? Are these headaches slowly damaging you beyond repair, or is it literally just a shit load of pain and zip more than?
As far equally I know, there is no long term impairment to the brain – which is so reassuring. At first, you tin can not believe that you tin can have this level of hurting without some sort of scaring on the brain, but its more downward to blood vessels in the brain contracting (or expanding, can never call back which) and causing the about unbelievable pain. I am so grateful that there is no long term impairment though….
Is there whatever illness/affliction you would Not prefer to have?
Yep, despite the pain and full general cr-pness of this condition, lets face it – people accept worse. its not terminal for a start. But if we are thinking not-terminal, my sis in law has MS and that scares me. Likewise Alzheimer'southward sounds really scary, equally does Parkinsons. I retrieve they scare me worse than what i have.
Source: https://cavemancircus.com/2022/01/05/whats-it-like-to-have-cluster-headaches/
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